Claire Wineland
Claire Wineland | |
---|---|
San Diego, California, U.S. | |
Occupation(s) | Activist, author |
Years active | 2010–2018 |
Website | clairesplacefoundation |
Claire Lucia Wineland (April 10, 1997 – September 2, 2018) was an American activist, author, speaker and
Wineland and a friend, Chynna Bracha Levin, wrote the book Every Breath I Take, Surviving and Thriving with Cystic Fibrosis, published by BusinessGhost, Inc. on Sept. 21, 2012.[4]
Personal life
Wineland was born with cystic fibrosis in
Activism
Wineland founded the Claire's Place Foundation at age 13.[2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families.[3] The foundation offers both emotional and financial support through their Support Families Network and the Extended Hospital Stay Grants program. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. The grants have enabled families to pay their mortgage, rent, medical bills and other essential living expenses. Support Families offers personalized support and assistance in areas such as treatment, care processes and emotional support from other parent volunteers.
"If my biggest problem in life was to be healthy, I'd be incredibly bored. I don't spend any time thinking about the day that I'm cured, or the day that I'm healthier, and that's because I know that on a certain level, it doesn't matter. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. Everything I'm proud of comes from some of the darkest things in my life."
Claire Wineland, reflecting on her outlook on life. Direct quote published by online
Wineland was chosen to be the keynote speaker at
Clairity Project and YouTube channel
The Clairity Project is a website featuring a series of educational videos and vlogs hosted on YouTube which hope to inspire and educate others about living with a terminal illness.[2] According to the website, Wineland's activism aimed "to shed some light on what it's really like to be sick, and change the way we view illness and those living with it.”[2]
On August 7, 2017, after not uploading any videos for over a year, Wineland returned to YouTube with a new account under her real name. Her first uploaded video, "I stopped doing the Clarity Project because I got screwed over," revealed that The Clairity Project was operated by a video editing company and she had little to no control or input over the editing of her videos apart from their filming and creation. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. Wineland stated she did not have the energy or the money to take the case to court.[10]
Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death.[11]
Death
On August 26, 2018, Wineland underwent a double
Legacy
In 2016, Wineland was listed as one of
The 2019 film Five Feet Apart was inspired by and dedicated to Wineland, who served as a consultant on the film.
"Claire" Documentary
YouTube Originals released "Claire,"
See also
References
- ^ a b "Its been a very long few days and I wanted to give everyone an update on how Claire is doing". Claire's Place Foundation, Inc. via Facebook. Archived from the original on October 18, 2019. Retrieved September 3, 2018.
- ^ a b c d e "Living while dying: 'Little Buddha' wisdom from a terminally ill 'goofball'". CNN. July 5, 2017. Archived from the original on September 5, 2018. Retrieved July 26, 2017.
- ^ a b c d e f Rosenfeld, Laura. "Who Is Claire Wineland? The 'My Last Days' Subject Is Helping Others Live Their Best Lives". Archived from the original on September 3, 2018. Retrieved July 26, 2017.
- ^ ""Every Breath I Take, Surviving and Thriving with Cystic Fibrosis"". Claire's Place Foundation. February 23, 2014. Archived from the original on February 1, 2021. Retrieved January 29, 2021.
- ^ "Meet Claire". North Star Moving. September 28, 2010. Archived from the original on September 4, 2018. Retrieved September 3, 2018.
- ^ a b "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle'". CNN. August 30, 2018. Archived from the original on September 4, 2018. Retrieved September 3, 2018.
- ^ "What I - and the World - Learned from Claire Winland's Passing". glamour.com. September 5, 2018. Archived from the original on April 12, 2021. Retrieved April 12, 2021.
- ^ "AARC Congress Announces Claire Wineland As Keynote Speaker". AARC. July 20, 2017. Archived from the original on July 28, 2017. Retrieved July 26, 2017.
- ^ "breathless choir – Claire's Place Foundation". clairesplacefoundation.org. Archived from the original on June 12, 2018. Retrieved September 4, 2018.
- ^ Claire Wineland (7 August 2017). "I stopped doing the Clairity Project because I got screwed over". Claire Wineland. YouTube. Archived from the original on 9 September 2018. Retrieved 9 September 2018.
- ^ Claire Wineland (7 August 2017). "Claire Wineland YouTube channel". Claire Wineland. YouTube. Archived from the original on 9 September 2018. Retrieved 9 September 2018.
- ^ a b "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant". CNN. September 3, 2018. Archived from the original on September 19, 2018. Retrieved September 3, 2018.
- ^ "Claire's Place Foundation, Inc". www.facebook.com. Archived from the original on April 14, 2019. Retrieved December 9, 2018.
- ^ "Meet the 2015 Teen Choice Pro-Social Honorees". Archived from the original on November 9, 2016.
- ^ "Nonprofit & Corporate Citizenship Awards 2014" (PDF). Los Angeles Business Journal. Archived from the original (PDF) on August 4, 2016. Retrieved July 26, 2017.
- ^ Claire | The Documentary, archived from the original on July 20, 2023, retrieved July 21, 2023