JDRF

JDRF is a nonprofit

JDRF was founded to find a cure for juvenile diabetes; in the 2000s, it broadened its research efforts to include ways to better manage the disease and ways to prevent it.[4]

In 2005 the board of JDRF committed to supporting work on medical devices to manage blood glucose, known as

In 2011, the FDA made it a priority to clarify the requirements for approval for such a closed-loop monitoring and drug delivery device for T1D, and announced it was preparing draft guidelines. JDRF launched a campaign to influence those guidelines to be lenient.[6] After the first closed-loop device was approved in 2016, JDRF lobbied insurance companies to cover it.^{[citation needed]} The campaign also put resources into educating people with diabetes on how to navigate health insurance in the United States, and into lobbying Congress to continue funding diabetes research through the NIH.^{[citation needed]}

The FDA lobbying campaign was part of a gradual realignment of the organization to focus on issues other than helping find a cure for JD, but to help treat and manage the disease. This broadened scope meant that the organization increasingly directed its funds to education and advocacy, along with research funding.^[4] This included lobbying insurance companies to pay for CGM devices, educating patients on how to advocate for themselves, and lobbying Congress for more NIH funding.^{[citation needed]}

In 1974, four years after JDRF was founded in the United States, a group of parents determined to find a cure for their children living with type 1 diabetes (T1D) came together and began JDRF Canada, launching the largest funder and advocate for T1D research in Canada. The UK arm of the Juvenile Diabetes Foundation (JDRF) was founded by Richard Lawson in 1986. In 1988 he became Director. The Foundation is now known as the Juvenile Diabetes Research Foundation (JDRF) and is "the leading global organisation funding Type 1 Diabetes research".

In 2019, JDRF International appointed its first-ever CEO and President with Type 1 Diabetes, Dr. Aaron Kowalski. Prior to taking this role, Kowalski served as JDRF's Chief Mission Officer for five years.^[11]

Research

In 2018, JDRF provided $85 million (37% of their total income) to T1D scientific research grants; they provided $156.4 million (67% of their total income) in 2008.^[12]

The images above provide an overview of JDRF research spending from 2001 to 2018. ^[13][14]

Noted philanthropists

• Woody Johnson, heir to the Johnson & Johnson fortune
• Jack Benaroya
• Barbara Davis
• Delta Tau Delta fraternity (official national philanthropy)
• Sheraton Grand Seattle - hosts annual 'Gingerbread Village' to raise funds for JDRF

See also

• Juvenation

References