Stephen Heywood
Appearance

Stephen Heywood (April 13, 1969 – November 26, 2006) was an American builder and self-taught architect, specializing in the renovation of old houses.[1]
He was diagnosed with
ALS in 1998, at the age of 29. He was the subject of His Brother's Keeper: A Story from the Edge of Medicine, written by the Pulitzer Prize-winning author Jonathan Weiner, and the documentary film So Much So Fast, which premiered at the 2006 Sundance Film Festival.[citation needed
]
His brothers
James Heywood and Benjamin Heywood are co-founders of a website for patients with ALS and other life-changing illnesses, PatientsLikeMe; his father is the engineering professor John B. Heywood
.
Heywood lived in Newton, Massachusetts, with his wife and son until his death at age 37 from an accidentally detached respirator in November 2006.
References
External links
- So Much So Fast Frontline
- PatientsLikeMe.com, a website for patients with ALS and other life-altering conditions, set up by Stephen's brothers Jamie and Ben Heywood