MAGIC Foundation

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MAGIC Foundation
Formation1989
TypeNonprofit organization
HeadquartersOak Park, Illinois, United States
Chairman
Rich Buckley
Revenue (2015)
$911,170[1]
Expenses (2015)$990,393[1]
Websitewww.magicfoundation.org

The MAGIC Foundation (short for Major Aspects of Growth in Children[2]) is an American non-profit organization which helps families of children diagnosed with a wide variety of different growth impacting medical conditions through education, networking, physician referrals and numerous other services. It was founded in 1989.[3][4] It is maintained through a network of volunteers and a full-time staff of five people. Their services include public education and awareness, quarterly newsletters, national networking, an annual convention, disorder specific brochures, and a Kids Program.[5]

The foundation has a membership network in excess of 25,000 families. The disorders MAGIC families have are grouped into primary categories. They include:

Russell–Silver syndrome, thyroid disorders (both congenital and acquired), optic nerve hypoplasia, and other rare disorders.[2]

Educational programs

MAGIC offers a national educational program every year for the families of affected children and another for affected adults. Physicians specialising in these disorders, from all over the world, volunteer to speak to and assist the children and affected adults. They also offer a weekly email with links to recently published medical information to parents of children impacted by Small for Gestational Age babies, Congenital Adrenal Hyperplasia, McCune-Albright Syndrome, Russell–Silver Syndrome (also known as Silver–Russell Syndrome), Optic Nerve Hypoplasia, Septo Optic Dysplasia, Hypophosphatasia, and others.

Controversy

The MAGIC Foundation received significant funding from

human growth hormone treatments.[6] The US Food and Drug Administration investigated Genentech in 1992 and 1994 for using numerous charities to improperly advertise this medication. None of the monies donated to either the Human Growth Foundation nor The Magic foundation were donated with any stipulations as to how the money was to be utilized. The donations were support funds for the patients affected.[7]

See also

References

  1. ^ a b "MAGIC Foundation" (PDF). Foundation Center. 25 October 2016. Retrieved 12 July 2017.
  2. ^ a b "MAGIC Foundation". MAGIC Foundation. Archived from the original on 21 March 2011. Retrieved 25 March 2011.
  3. ^ NORD Guide. National Organization for Rare Disorders. 1997.
  4. . Retrieved 14 April 2010.
  5. ^ "MAGIC Foundation". NORD (National Organization for Rare Disorders). Retrieved 10 July 2020.
  6. .
  7. ^ Kathleen Day (16 August 1994). "Genentech, Nonprofit Link Studied; Agencies Probe Whether Foundation Helped Sales". The Washington Post. Washington, D.C. Archived from the original on 5 November 2012.

External links