Sean F. Scott

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Sean Forrester Scott (May 20, 1969 – February 9, 2009) was a self-educated disease activist and researcher, filmmaker, innovator, entrepreneur and until the time of his death, the president of the

Scott became active with ALS TDI when his mother, Vanna, was diagnosed with ALS in 2001. Four more of Vanna's seven siblings succumbed to the familial form of the disease by 2007, and eventually Sean Scott too died of complications from ALS in 2009.[3]^[2]

In 2008, Scott was lead author of a landmark publication in the journal, Amyotrophic Lateral Sclerosis that described guidelines for experimental design of studies evaluating therapeutics in the mouse model.^[4] The work identified crucial errors present in many existing preclinical ALS studies. Scott's effort to establish standard model guidelines for preclinical development in ALS was featured in Nature in August 2008.^[5]

In 2006, Scott's effort to fund the ongoing research led him to Augie Nieto and Sharon Hesterlee. The ambitious $36 million partnership brokered between ALS TDI, Augie's Quest and the Muscular Dystrophy Association, a partnership that survived Scott, allowed for major expansion of the Institute's efforts to include the identification of genes that behave unusually in ALS and to determine how those differences affect the disease.^[6][7]

Personal life

Scott was married in 2008 to longtime companion Nancy Kelly, who was also involved in ALS activism. Scott lived in

Scott earned an undergraduate degree in rhetoric from the University of California, Berkeley.

References

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