Epilepsy Society

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Epilepsy Society
TypeCharitable organisation
Registration no.206186
Location
  • Chesham Lane, Chalfont St Peter, Buckinghamshire SL9 0RJ, UK
Websitewww.epilepsysociety.org.uk
Formerly called
The National Society for Epilepsy

The Epilepsy Society (formerly known as the National Society for Epilepsy) is the largest medical charity in the field of

UCL Institute of Neurology, both located in Queen Square
, London.

Services

Epilepsy Society is a leading epilepsy medical charity supporting all people affected by epilepsy. The services provided by the charity include:

History

Passmore Edwards House, part of Chalfont Centre

In 1892, a group of physicians from

National Hospital for the Paralysed and the Epileptic, together with various philanthropists, founded the National Society for the Employment of Epileptics.[7]
The first executive committee of the Society included the notable physicians
Sir William Gowers, and David Ferrier. The aim was to establish an agricultural colony where people with epilepsy could live and work. A 370-acre (1.5 km2) farm was bought in Chalfont St Peter which at its peak in the 1950s, cared for over 550 people.[1]

A National Health Service treatment unit was established at Chalfont in 1972.[1] Around this time, the Society became known as The National Society for Epilepsy (NSE).[8]

In 1995 a 1.5 tesla MRI scanner was installed - the first dedicated to research in epilepsy. This has now been superseded by a 3 tesla instrument in 2004, which produces higher resolution images. The NSE's MRI Unit is at the forefront of medical imaging research applied to epilepsy. In 2011 the charity changed its name to Epilepsy Society.[8]

Online safety

In April 2019, the Epilepsy Society launched a campaign to ban so-called epilepsy trolling, where online trolls target people with epilepsy, sending them flashing images and

GIFs with the intent of triggering a seizure.[9]

Following a large-scale attack on people with epilepsy in May 2020, including an 8 year old charity

fundraiser named Zach Eagling, the Epilepsy Society titled the campaign "Zach's Law."[10]

After it emerged that no existing legislation specifically criminalised this type of trolling, the Zach's Law campaign was endorsed by the Law Commission (England and Wales),[11] featured on the front cover of the Daily Express[12] and in the Metro (British newspaper).[13]

MPs including Dean Russell,[14] Suzanne Webb,[15] Kim Leadbeater[16] and John Nicolson[17] backed the campaign and met with Zach on several occasions.

On the 5th December 2022, Zach's Law was officially included in the Government's Online Safety Bill and became law in September 2023 when the Bill completed its passage through Parliament.[18] The law will criminalise the deliberate sending of flashing images to a person with epilepsy with the intent of triggering a seizure, and offenders could face up to five years in jail.[19]

References

  1. ^ a b c d Chalfont Centre Duncan, JS & G Faulkner. Seizure. 2003. Retrieved 13/04/18
  2. ^ a b Brain Damage Link to Epilepsy BBC News
  3. ^ Public "ignorant" about epilepsy BBC News
  4. ^ a b Epilepsy Employment Stigma can be Overcome Archived 2016-10-19 at the Wayback Machine UCB News, May 2016
  5. ^ Epilepsy Society Increase Valproate awareness ITV News, 26/09/17
  6. ^ Epilepsy Spirit Myths Endure BBC News, May 2003
  7. PMID 8509771
    .
  8. ^ a b "The History of Epilepsy Society". Epilepsy Society. Archived from the original on 9 October 2011. Retrieved 7 August 2011.
  9. ^ "Epilepsy Society calls on Gov to safeguard people with photosensitive epilepsy online | Epilepsy Society". 15 April 2019.
  10. ^ "Hero Zach completes his 2.6 challenge | Epilepsy Society". 6 July 2020.
  11. ^ "Law Commission recommends specific offence for malicious tweets sent to trigger seizures | Epilepsy Society". 21 July 2021.
  12. ^ https://epilepsysociety.org.uk/sites/default/files/2021-02/Daily%20Express%2019%20February%202021.pdf
  13. ^ "Trolls attack boy with epilepsy, 8, by sending him hundreds of flashing images". 29 May 2020.
  14. ^ "Dean Russell supports the inclusion of Zach's Law into the Online Safety Bill during final stages". 18 January 2023.
  15. ^ "Zach's Law". 28 October 2022.
  16. ^ https://www.dewsburyreporter.co.uk/news/people/batley-and-spen-mp-kim-leadbeater-welcomes-publication-of-zachs-law-to-protect-people-with-epilepsy-3898085
  17. ^ https://twitter.com/MrJohnNicolson/status/1471864413355491333
  18. ^ "Youngster celebrates new law after campaign against trolls targeting epilepsy". independent.co.uk. 20 September 2023. Retrieved 22 September 2023.
  19. ^ Hymas, Charles (17 February 2023). "Trolling of epilepsy sufferers with flashing images to be made illegal". The Telegraph.

External links

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