The Indian Stammering Association
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The Indian Stammering Association (TISA) is a public charitable trust and self-help movement for people in India who stammer. In India a person who stammers (PWS) faces stigma at home and in public, as often parents chide their children publicly, and social acceptance is not high.
Background
An estimated 11 to 12 million people in
Formation
TISA grew out of an e-network managed by Viren Gandhi from
Some group members met in person for the first time in Mumbai on 13 April 2008, where they determined to start a self-help association to be named The Indian Stammering Association.[9] TISA started a blog on 9 May 2008, the first Indian blog about stammering in open public internet space, unlike chat groups, which required registration and were open primarily to those who stammer.[10]
There had been parallel and/or preceding attempts by Indians to address coping with stammering. Inspired by Keith Boss, a trustee of the British Stammering Association and board member of the International Stuttering Association, a small group of Indians started an internet group. One Indian PWS contributed to International Stammering Awareness Day in 2006[11] and another attended the world congress in Croatia in 2007. A group in Chennai had been meeting under the statute of Mahatma Gandhi on the Marina Beach from 2001. The Samagra Trust also helped TISA in its formative years by, among other things, publishing a booklet on stammering.[12]
The Indian Stammering Association launched its official website on 15 August 2009 and was formally registered as Public Charitable Trust No. 6055 on 13 November 2009. The trust's head office is located at Herbertpur, Dehradun, Uttarakhand, India. By October 2020, the body grew to include self-help groups, online courses, daily virtual meetings, counseling, communication workshops, and other support, and has over 8,000 active members from places like Pune, Jaipur, and Lucknow as well as metro cities.[8][13]
Activities
The trust has conducted self-help workshops in various Indian cities, based on acceptance, breathing techniques and CALMS approach. A model of the workshop is freely available on the internet.
Self-help groups
Groups are open to those taking speech therapy from any source, and are facilitated by a volunteer PWS. The facilitator provides the opportunity for members to practise communication skills in a group setting, to offer and receive counseling, and to gather information about techniques and therapists. TISA recommends that self-help groups limit themselves to no more than 12 participants (with no minimum). Cities with TISA self-help groups include
TISA's self-help communication workshops last from three to ten days, depending on participant needs and time availability. These workshops are based on acceptance: Even though I stammer, I accept myself wholeheartedly, because there is an inner perfection in me. Breathing techniques based on
Members also interact through many communities (where they are known by their nicknames) including three on the social-networking site Orkut, and several e-groups for PWS where they discuss their lives and problems and comfort and support each other, knowing that no one is alone and that the condition is common.[1]
Advocacy
In October 2010, TISA filed a public interest writ petition against the director and producers of the film Golmaal 3 and the censor board of India at Uttarakhand High Court, objecting to the film's portrayal of stammerers as objects of ridicule, on the ground that this promoted discrimination, teasing and bullying of people who stammer.[28][29][30]
Philosophy
TISA philosophy consists of two precepts: "Accept stammering and work on communication".
See also
- Speech–language pathology
- International Stuttering Awareness Day
- European League of Stuttering Associations
- British Stammering Association
- Israel Stuttering Association (AMBI)
- United States Stuttering Association
- Cultural references to stuttering
- Stuttering therapy
- Anti-stuttering devices
- Wiki book on Stuttering
References
- ^ a b c d e f Suryanarayan, Deepa (January 4, 2010). "Who needs help, he who stammers or he who doesn't?". Daily news and analysis. Mumbai- India. Retrieved 23 November 2010.
- ^ Sheth, Dr Parul R (October 22, 2010). "Stuttering challenges". Times of India—Times Wellness.com. Retrieved 28 November 2010.
- ^ Olwoch, Anthony; Okwera, Oyet (6 June 2010). "Speech Defect - Tension, anxiety trigger stammering". New Vision. Retrieved 23 November 2010.
- ^ K.Lakshmi and R.Sujatha (January 20, 2010). "Tongue-tied for fear of stammering? Shed myths Health & Lifestyle". The Hindu. Chennai. Archived from the original on January 22, 2009. Retrieved 28 November 2010.
- ^ "ICD Version 2007—Mental and behavioural disorders". WHO. Retrieved 28 November 2010.
- ^ Suryanarayan, Deepa; Madhoomita Mookerji (April 14, 2008). "Speech therapy is extremely expensive". Daily news and analysis. Mumbai. Retrieved 28 November 2010.
- ^ Bhanushali, Kishor. "Defining Disabilities: NSSO v/s Census". Disability India Network. Retrieved 26 November 2010.
- ^ a b c Ahuja, Simran (22 January 2020). "'Need to be open about stammering'". The New Indian Express. Retrieved 21 April 2021.
- ^ Boss, Keith (July 2008). "Work in outreach" (PDF). One Voice (25): 3–4. Retrieved 21 November 2010.
- ^ "Yahoo | Mail, Weather, Search, Politics, News, Finance, Sports & Videos". Archived from the original on July 10, 2012.
- ^ Sachan, Prakhar (12 August 2006). "Influence of Stuttering on Career Decisions: A Personal Story". mnsu.edu. Retrieved 23 November 2010.
- ^ Srivastava, Satyendra. "Samagra Publications". Retrieved 26 November 2010.
- ^ "Do you stutter? Tips on living with it and feeling better about yourself". 21 October 2020. Retrieved 21 April 2021.
- ^ "Communication Workshop for People Who Stammer (PWS)". The Indian Stammering Association. 7–17 January 2010. Retrieved 23 November 2010.
- ^ "Stammering for Dummies: A self-help manual from The Indian Stammering Association". The Indian Stammering Association. 10 March 2009. Retrieved 23 November 2010.
- ^ "Finding ways to attain eloquence". The Hindu. 23 February 2010. Archived from the original on 13 January 2011. Retrieved 20 November 2010.
- ^ Alvi, Naziya (22 October 2009). "Hiding makes problem worse". Hindustan Times. Archived from the original on January 25, 2013. Retrieved 20 November 2010.
- ^ Suryanarayan, Deepa; Mookerji, Madhoomita (14 April 2008). "Conversation, interrupted". dnaindia.com. Retrieved 20 November 2010.
- ^ Ramanan, Revathi (24 January 2011). "Stammering a genetic disorder: Expert". The Times of India. Archived from the original on 4 November 2012. Retrieved 30 January 2011.
- ^ a b "First NC Report: Expert" (PDF). stammer.in. 24 January 2012.
- ^ "Hrithik Roshan to become brand ambassador of The Indian Stammering Association (TISA)". Firstpost. 17 March 2019. Retrieved 21 April 2021.
- ^ Mathai, Kamini TISA Chennai Chapter inaugurated!, quoted in The Times of India, 21 January 2009. Accessed 22 November 2010.
- ^ George, Mary; McHugh, Megan. "CALMS Method of Assessment/Treatment". mnsu.edu. Retrieved 23 November 2010.
- ^ Reitzes, Peter. "50 Great Activities for Children Who Stutter". Retrieved 26 November 2010.
- ^ Mandal, Manidipa (February 9, 2010). "Stuck in a Stutter?". livemint.com, Wall Street Journal. Retrieved 28 November 2010.
- ^ BASU, RITH (April 19, 2010). "Self-help group for speech problem". Calcutta, India: The Telegraph. Archived from the original on February 4, 2013. Retrieved 28 November 2010.
- ^ "TISA SHG in Indore".
- ^ Shah, Kunal M (November 16, 2010). "Golmaal 3 sued!". The Times of India. Mumbai. Archived from the original on November 4, 2012. Retrieved 28 November 2010.
- ^ Bhatti, Sharin, Golmaal 3 sued, Shreyas Talpade shocked! Archived 2011-05-15 at the Wayback Machine. Hindustan Times, 18 November 2010. Accessed 21 November 2010.
- ^ Agencies (15 November 2010). "Shreyas' stammer becomes issue of contention". Indian Express News Service. Retrieved 23 November 2010.
External links
- Official website
- Official blog
- British Stammering Association Says
- Bollywood Star Talks About His Stuttering how he managed his problem
- An Institute producing global professionals to help the people having communication Disorders
- All India Institute of Speech and Hearing
- U.S. National Institute on Deafness and Other Communication Disorders
- Stammering and role of Speech Language Pathologist/Speech Therapist
- International Stuttering Association